Our friend Noah has Angelman Syndrome. When he was a baby, his parents were told he might never walk. Today, he skis. Only 8 years old, Noah is an inspiration, as are the adaptive ski programs and ski instructors who’ve worked with him.
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Google+
Hello,
I just wanted to share that a Facebook group that was started by a father who lost a child with Angelman Syndrome to epilepsy has planned a ski trip in February 2012. Please visit the group “Suck Feizures” and meet Mike “The Bulldog” Ross, he has been a great advocate for Angelman Syndrome and Seizures and is just a great guy. Please feel free to contact me directly or visit the “Suck Feizures Skis 2012″ group on Facebook!
My son Nick has Angelman syndrome too!
Bridget Cella
Hi Bridget,
Thank you so much for sharing. I will be in touch with you directly. Cheers!